A Note to Parents of Children with Down Syndrome

Every family has their stresses, challenges and joys but when you have a child with Down syndrome, things are a little different. Besides juggling school, classes, sports, and jobs, you typically have a lot of extra visits with doctors and therapists in the mix.

That makes it even more important to accept the help offered and to pay attention to your own needs. Here are a few ideas:

Build a support system

Invite your friends and family to take part in caregiving.

Talk about your challenges with family and friends

People want to help, but don’t always know how. A simple, “It’s hard to manage a healthy meal on the table with all these appointments,” opens a door and gives them ideas of what they can do.

Keep a list of things you need

Do not be afraid to use it. Next time someone says, “Just let me know how I can help,” you’ll be ready with things you need help with.

Go easy on yourself

You might think about seeing a therapist. They can help you to work through your feelings and provide you with tools to handle everyday stresses.

Take good care of your health

Exercise and eat well, even when you feel exhausted. Make a plan and stick to it as much as you can.

Everyday Tips

Like most children, kids with Down syndrome tend to do well with routine. These kids respond better to positive support rather than discipline. Keep both these things in mind as you try the following tips.

Help your child change from one activity to the another one with very clear signals.